Smiling again in Kearney

Monday, August 20, 2012

It's so exciting to be able to shard good news tonight! Shelley is feeling a lot better today--her pain in under control, she's sleeping at times, the demon mucus is not quite so bad. It seems like she has rounded the bend again! Her white count is up from .7 to1.1 (normal is something like 4-7.) Her fever is way down although she still has a slight fever. The criteria for going home is to be fever free for 2 hours. She didn't have radiation today, and it will depend on what her white count is tomorrow morning whether she'll have radiation tomorrow or not.

Now that Shelley is feeling better, everyone else is felling better, too. I'm sure you've heard the saying, 
If momma ain't happy, ain't nobody happy." Well, this is just a little variation of that! The mom really IS the heart of the family. (She won't like that word 'ain't' soiling her blog--sorry, Shelley!)

Just a little picture of Shelley's spirit--the doctor's physician's assistant came in today and sat and talked with her at length, reassuringly. Shelley then wrote a note ofj the PA, "I'm going to be fine..." Jim, Lorene, Lynette and Dorothy have all had their turns being with Shelley today. Dorothy will be staying the night tonight--Jim is there right now.

11 comments:

John and Sandy Linder said...

Smiles over Kearney gives us smiles too! So glad for another bend in the road behind you1

August 20, 2012 at 9:12 PM

Renee said...

What a gal you are, Shelley! My heart feels lighter hearing this lovely news!! I do believe you are living up to you little quote over to the right..."What must be done, is best done cheerfully." Sleep tight, Shelley Anne!

August 20, 2012 at 9:19 PM

Oleva said...

So glad I checked this fore turning in for the night because it is a good "bedtime story." Glad another corner is turned and hope the next is mere curves until this treatment business is ALL over with. Hope to see Bonita this weekend--prep time is WI.:-)

with care 

C. and Oleva

August 20, 2012 at 10:20 PM

Anonymous said...

Shelley, Another tough stretch is now behind you. You continue to amaze me with your attitude. Keep itj up! Looking forward to when we will be able to see your smiling face on Sunday mornings! Each day gone is another day closer. Hugs, Holly

August 21, 2012 at 12:05 PM

Luanne said...

Keep on smiling...please! hugs to you today. Lu

August 21, 2012 at 12:22 PM

gkey said...

Dear smiling again,

I wish I would have opened this last night! Glad for the "up-again-update."

Thanks for letting your very dear Sis in laws take care of the blog when you can't.

Love, 

The Gkey friend

in NE

August 21, 2012 at 3:07

Dan & Cyndie said...

So glad for an UP-date :) When we stopped up to the hospital Sunday you were quite miserable & yet still gave us a smile or two!!

Loving your spirit, your attitude...just loving you

August 21, 2012 at 6:47 PM

Gramma Lorna and Grampa Garland said...

Checking your post this evening to see how your day went today, but that ghost rider, er... writer must be too busy to right, er... write! :-) Hope it was an even better day!! Love you!!

August 21, 2012 at 9:17 PM

The J's said...

A big "Thumbs UP" :)

August 21, 2012 at 9;17 PM

Dorothy K said...

To those following this blog. We're going to wait until the Dr. comes for the "authorized writer" to post a blog...the deal is she had a rather rotten day yest and a bump in the road last night, but now is tending right back up...just going to set back the earlier plan of her getting dismissed today. Authorized writer will tell ya all about it!

Dorothy

August 22, 2012 at 9:05 AM

Renee said...

We are here checking in, Dorothy, and thankful for the update. Didn't like it's contents, however. Glad to read she's marching upwards again now!! Thanks for posting!

August 22, 2012 10:29 PM

Just by a thread...

 Sunday, August 19, 2012

This will just be a quick update tonight for those of you who make up Shelley's support group and cheering section. First of all than you so much to everyone who is caring, praying, writing, cooking supporting, visiting, standing by, even "commenting." This is truly and "in the trenches" experience and you are helping make it more bearable.

If you peek into Shelley's room tonight at Good Samaritan Hospital, you will find her propped up in a sitting position trying to get some relief from mouth pain and the mucus situation. Pain control has been a big issue today and maybe they're getting that worked out now. Her white count hasn't improved today, in fact has slipped down in the wrong direction a little more. Hopefully, tomorrow will see the white cell count climbing. 

She still has a fever, although not as high as it was at first, hard to think that she'll be able for her radiation treatment tomorrow, but guess that really isn't decided at this point. Dorothy is spending the night with Shelley again tonight, and JIm is going to try to sleep at home.

Still hanging in there, but just by a thread...

Shelley and family/by guestwriter

9 comments:

Lynisha Weeda said...

Thinking of you all - still- hope you can find some relief from the pain, Shelley!

Your "journey" began as we were finishing up the school year, and now here we are starting a new one tomorrow. After updating myself on your blog this evening, suddenly any pity thoughts toward myself are gone and thankfulness its in its place. 

Know that you are in our thoughts and praters more often than I express!

August 19, 2012 at 10:44 PM

gkey said...

Dear Shelley, 

Hope you get better quick, but glad they do know how to do the best things for you right now to help get you there. 

Love, 

G

August 19, 2012 at 11:07 PM

Renee said...

No words... just lots of love.

August 19. 2012 at 11:50 PM

Anonymous said...

So wishing there was something we could do to help, but just know you are all wrapped tight in our love, thoughts and prayer! Hoping for a better day today!!

August, 20, 2012 at 7:39 PM

Lanae said...

Just thinking of you SO much, Shelley, and your family, too. So sorry for all that has do be endured, is being endured, and hope for brighter days when you can look back and rejoice in having made it through. My love and prayers to all...and thankful that Dorothy can be there to help, too.

August 20, 2012 at 8:54 AM

Anonymous said...

Shelley and family,

Just thinking of each one of you so much lately. Just know there are virtual hugs coming your way today. Hopefully, the doctors can get on top of the pain today and make it more bearable for you.

Love and hugs, Holly

August 20. 2012 at 11:53 AM

Anonymous said...

Thinking of you all there with lots of love and care.

Karla and Mike

August 20, 2012 at 2:52 PM

Ruth said...

Hugs and care to all of you...

August 20, 2012 at 7:45 PM

The J's said...

I was so glad to see you this afternoon--and looking/seeming must improved from yesterday! Keep pushing forward!❤️

August 20, 2012 at 8:05 PM

The good, the bad and the ugly, part II

 Saturday, August 18, 2012

It's the commissioned author again. It seems like my posts are the gloomy ones, but that's the way it is. If Shelley was feeling good, she wouldn't be asking anyone to write a post -- she'd be doing it herself. But, she also knows that you are waiting for word, and she can appreciate the fact that others are thinking of her and wishing her well.

Going into the weekend, Shelley wasn't feeling well. They even went to see the doctor before the weekend, because over the weekend you usually get worse! The last 24 hours have been miserable, with almost no way to get comfortable and almost no sleep. At 4 am this morning, she was running a considerable temperature, and after calling the doctor, they went in the ER. After bloodwork, it was determined that her white count was really low (ANC of below 500, for you medical types. They also determined the the hospital was the best place for her right now, and we'll be there at least through the weekend. receiving IV antibiotics. The low white count is from the chemo, but the radiation is leaving plenty of it's side effects--mouth sores, sore throat, mouth pain, and the copious amounts of mucus. Since she's been in the hospital they've switched around her pain medications because of what she needs to take for fever control and that hasn't been a good thing at all. It's just a terribly miserable time for her, and she's just "enduring" at this point. The radiation is starting to "burn" her face--a triangle from her nose to the chin and also on her neck.

Now, for the snippets of good news: Monday likely marks the last of her "regular" radiation. After that they'll do a week (or more) of "boost" radiation, which concentrates specifically on the area where the tumor was removed. Hopefully her poor neck will get a rest from those ugly beams.

More good news: Dorothy has arrived to help our for a while. Shelley's voice has been pretty much gone for a couple weeks so she has had to rely heavily on writing notes, texting, and now she's using a bit of sign language to communicate. The fact that she can't talk makes it pretty important that there is someone with her most of the time, especially in the foreign world of the hospital. There won't be any shortage of things for Dorothy to do while she's on her "vacation!"

So, thanks again for your continued interest in Shelley and her tribulations. And, also thanks for your thoughts toward the rest of the family. Jim claims her has a case of "chemo brain" himself, these days. Never knew it was contagious....

Good night, all!

9 comments:

The Chairman's Wife said...

So sorry to read this even though I really like the ghost writer. There is nothing to say other than our thoughts of love are keenly in NE with you all.

August 18, 2012 at 9:32 PM

Renee said...

Me oh my. This things the ol' body is sometimes called upon to endure is fierce!! My yearnings for relief and better days for dear Shelley and her other half are as heartfelt and deep as could possibly be. Thanks thanks thanks for the update!!

August 18, at 10:35 PM

Anonymous said...

Ahh so sad to read this but thank you for letting us know! So glad she has someone to be with her!! Tight hugs to her and warn thoughts to all that are these helping her through!!

August 18, 2012 at 10:39 PM

The J's said...

Sad here too...:( 

So glad for the update tho and the Miss D has arrived. Hoping for relief soon for you Shelley!

Much love & care--MJ

August 18, 2012 at 11:01 PM

John and Sandy Linder said...

We are so thinking so Shelley and all of the family. We hope she is able to get some relief soon!

August 19, 2012 at 8:23 AM

Oleva said...

Thanks for an update because we care.

Jim, you are living you to your wedding vows are we admire that!!!!

Glad for the strong love that carries you thru this busy, difficult time. Glad Dorothy can be there for help and support that all of you need. Spec. greetings to Shelley. Hope this very unpleasant time passes soon.

Love, Carl and Oleva

August 19, 2012 at 7:09 PM

Darcie said...

It's been awhile since I have been over, and my heart is hurting for our dear Shelley!

What a road this has been, for her and her family.

Thank you for the updates, and hoping for some sunshine to be sent Shelley's way soon :-)

August 19, 2012 at 9:38 PM

gkey said...

Dear in the trenches,

I keep getting this picture we talked about early on...the fight, the endurance, the long days and nights, the pain...if we could just take some of it away for your my ear Shelleykins!

Love you so much.

August 19, 2012 at 10:59 PM

Ruth said...

My heart aches for all of you...this is truly the endurance part of the journey. Healing days are just ahead...hang in there. Love and prayers for all of you1

August 20, 2012 at 7:42 PM

The Good, The Bad, and The Ugly

 Monday, August 13, 2012

Time to take the bull by the horns and write a post whether I feel like it or not. Yesterday, it felt really good, "I'm half done with chemo,' having two rounds behind me, and two left to go. Today it doesn't feel go good since we were askng the radiology oncologist, what the next two weeks of radiation would look like, and he said, "I reserve the right to add more more radiation if it is needed." So, it doesn't feel equally good to say, "I'm 2/3 done with radiation," because I don't know if I am. 

In fact, I'm rather in a turmoil of emotions altogether, and don't really know what I feel everything seems up in the air at the moment.

One thing I know I feel, is that I would really, really like to be done with the radiation, and the side-effects of that are hardly started yet. I don't have any of the skin burning and peeling which is going to have to happen before this is all done.

It is also really hard to know what sort of things to post because side-effects aren't really pretty. I mentioned before that the radiation is damaging internal mouth tissue and then as the body tries to heal up that tissue, I produce copious amounts of mucous.

And of course, the weekend also brings with it the next round of side-effects, which is this case is more mouth and throat pain and the mucous. I have painkiller for the throat pain, which is turning out to be very necessary, and regular Robitussin cough syrup help thins the secretions and make them easier to manage.

I also am renting a suction machine to clean out my mouth. This is another one those, "who wants to read about TAHT in a blog." moments, and then someone says, "surely you make THAT funny," which I'm not sure I can or want to. 

Of course, anyone who's been around small children knows that life can be pretty gross at times. In, fact depending on the kind of people you know, life can be pretty gross. And that is just normal grossness, sometimes you can know some pretty strange teenagers.*

The worst thing about a suction machine is that it makes a lot of noise, especially at night when Jim is trying to sleep. Last night I was awake every couple of hours, but I'm hoping with the Robitussin, tonight won't be so bad. Jim said he always went right back to sleep, but I still feel for him.

We've managed to sleep in the same bed all this time. I'm not sleeping lying down of course, because of drainage, but I have quite the contraption of pillows to keep me upright and in my own bed. I'm much more comfortable there.

So, dear one, no post of sparkling wit is coming your way, today. It is par for the course, really, as the radiation and chemo take its toll on my body and mind but this is what is happening here at the moment anyway, and we are tackling each problem as it comes.

*2022--I wonder now where I was going with this. I don't remember any incidents.

14 comments

John and Sandy Linder said...

You are such a trooper! Hang in there girl we are root'n for you!

August 13, 2012 at 7:49 PM

Anonymous said...

Shelley,

What comes to mind after reading your post is..."You can do it Shelley; we are all cheering for you!" I can't imagine the emotion that goes though you during a time like this. i think you've handled it amazingly well, in fact, better than I've seem anyone handle it before. Just know you have so much support. Love you!! Holly

August 14, 2012 at 8:45 AM

Renee said...

Of course we don't expect sparkling wit and humor...a blog post of any sort is a feat of great accomplishment when you are feeling so sick. I DO like knowing what you are coping with because I think of you so much. And who knows how long it will be till any of us could be dealing with the same sort of things? So being in the 'know' is always a good thing. Gross or not! I hope your night last night was blissfully uninterrupted! }}}Hugs}}}

August 14, 2012 at 8:54 AM

Anonymous said...

Dear Shelley,

Even thought I've only commented once before, I do read you blog quite often. I really feel for you and know that what you're going through is quite a thing, but I, along with others, really appreciate your openness, in sharing your experiences with us. I love your sense of humor! I also love the spirit with which you are handling this. After reading this entry, and all you "side-effects" of the treatments, it did hit me a little harder, tough, and it makes me hope that things will go the best they can and that all this will be behind you as soon as possible!

Barb from MN

August 14, 2012 at 9:33 AM

Dorothy said...

Good Morning! I am happy for every day that you get one more treatment under you belt, so that is what I'm oping will happen today again. And we are all hoping oh so much that Dr. L won't see any need to add more radiation! The days march by, one by one, and glad that you have enough strength from time to time to write a little something...even it it's the bad and the ugly. It gives us pause. See you Saturday!

Dodie

August 15, 2012 at 7:29 AM

Luanne said...

Thanks for writing...even the ugly and the gross. You have to live it, we can at least know it! Thanks for being brave, and strong. I admire you so much. Hugs you way today. Luanne.

August 15, 2012 at 5:44 PM

Oleva said...

Seems at this point you are so brave and strong...in spirit. So glad for what is already past tense.

Every time you have to do the "spew out gross thing" think of the name of a friend and say to yourself "they are thinking about me" cause we all are!!!!!! :-)  (mind diversion)

Carl and Oleva

August 15, 2012 at 11:39 PM

Listy said...

Thinking of you and whether w/ wit or the rawness of reality....It's just plum good to see new posts and helps us know where and how you are on your journey. Thanks.

August 16, 2012 at 9:17 AM

Amy said...

Hi Shelley, I have read your blog and enjoyed it, and just want ot let you know you are being remembered up here in Montana. I am so sorry you are having to go through the chemo/radiation ordeal. I have 3 sisters that have been down that road, so I can relate to some of your experience. We have learned that attitude makes a lot of difference, and your is great. Thinking of you and following along with positive thoughts! love, Amy (P.S. here is a quote form one of my sisters: "I hope you can keep your chin up and your food down"!)

August 16, 2012 at 9:38 AM

Gramma's Corner said...

Jane wrote "...thinking about you tonight...glad you have all the pillow to prop you up!!

Hope you can get some rest and that tomorrow will be better!!!"

August 16, 2012 at 10:03 AM

The J's said...

I was gone again, and didn't see this until today. I have to say that along with the good, bad & ugly I thought you STILL managed to come across with some wit!! Yes, babies, kids & teenagers all can be pretty gross at times...and actually so can adults not even going thru chemo & rad.!! Remember "The people of Walmart?" lol! Anyway, your readers are here because they want to read/hear, to know how the journey goes. Hoping I can stop in again soon, and would be nice to D too!

August 17, 2012 at 6:24 PM

gkey said..

Dears,

"into each life, some rain must fall...some days must be dark and dreary.: I am not sure exactly how that poem goes, but thought f it tonight. Thinking so much about you and hoping this week the picture gets brighter!

Love, Gkey

August 19, 2012 at 10:52 PM

Elaine T. said...

So sorry for all you're having to go thru. No matter how many more days they tack onto the "end", just remember: "This, too, shall pass." Hand in there. Sorry for the setback you've had this past wkend, hopefully you'll soon be back on track.

August 20, 2012 at 10:36 PM

Anita said...

I've not been reading blogs again...and see I've missed quite a bit again. I, too, am glad you had those pillows! Lots of love!

August 27, 2012 t 12:14 PM

Hair Today Gone Tomorrow

 Tuesday, August 7, 2012

I don't know if I have used this title before. It sounds like a good one to use for the time I butched Nathan's head or the time when Jim cut Zane's hair for the first time. I don't know. I would have to go back and look. Perhaps that why people have search boxes on blogs. 

Anyway, after yesterday's marathon of ER visit, mismanaged chemo orders, and a very long day, I thought I would still have enough energy to type a nice blog post. The steroids, however, lasted only long enough for treatment to be over and then I was tired. The ER visit was diagnosed as infection in the tissue surrounding the tube, and was much improved  by Monday afternoon The Chemo Drug story is much more interesting. We went early to have blood drawn, but having it done completely in the ER, we got an early start on the doctor visit, which was great, except when the time came for faxing the chemo orders, the nurses had all gone out for training, and the PA couldn't find the fax number. She then took it to the front desk to fax, and I was thinking, "couldn't we just carry them?", when it all seemed taken care of and I was whisked away in the wheel chair, it wasn't taken care of and the nurse sent someone over for it. At the end of the day, it happened again. We were waiting on the last drug that takes three hours to go through and here it wasn't. She had to sent someone out again. So, it was after 6p when were dismissed. 

So, I was tired.

Hair is such a bother in chemo and radiation. I can't have any metal on my head during radiation, so I've just been wearing it in a braid, and combing more hair out every day, that when I had half my braid left, I just had Lynette cut it off. Every morning, the hair was so matted above the braid that I was pulling handfuls of hair out to re-braid it. We decided it was time to just let most of it go. 

The final style.

Which was great, excpet now I have " long hairs floating around behind me and that wasn't working either. So, Jim cut all about 1 1/2" long, but that still left 1 1/2" long floaties, in the air, on the couch, on my pillow, wherever.

I know after living with long hair for so long, it was hard just to think of going right to the bald stage, so I thought little by little would help. It does some, it give the illusion of not losing my hair so quickly, but like to many things, I quickly realized that it was only a temporary solution to an on going loose hair problem. 

So, last night, Jim got out the clippers and performed the final shaving. 

Ha, I bet you thought that the next picture would be me bald!

Here I am all set up for a long chemo day, except Lynette came in an snitched the computer, so I did other things instead and Dan and Cyndie came to visit. 

I, actually, have a little hair, it is combed.

16 comments:

Renee said...

Hey you...just LOOK at that...you look adorable in your little pink hat!! Seriously it must be a relief to just be rid of it. What a fiasco with the chemo orders and meds....I loved this post. I love you and I loave your spirit!

August 7, 2012 at 2:01 PM

Renee said...

The Blog title is quite clever I might add!

August 7, 2012 at 2:02 PM

Dan & Cyndie said...

I am smiling after reading Renee's posts above because I was thinking pretty much the same thing....I love your smile & I love your writing & I just love you...your spirit is wonder-full:)

August 7, 2012 at 3:15 PM

Listy said...

Priceless...love this...Circumstances don't have to be loveable...It's just pretty near to be in them yet rise above...And cheer our hearts...CBL

August 7, 2012 at 3:37 PM

Anita said...

And thanks for sharing your journey with us. It's touching and encouraging...and we care. I must admit to getting a little emotional when I saw the pictures progress I've known so many who 'made this trip' but I was too far away to share it with them so this does mean a lot to me. xo

August 7, 2012 at 4;12 PM

The J's said...

I am so glad you are able blog! Since it's impossible to be there or talk to you much, at least you (or your writer) can keep us informed! So happy worked out for a little visit today, hope we didn't wear you out too much.

Hey, what's a bit of hair anyway!! No fuss, no muss! And, not all of us get to start over on what we ahve :) Just think of all the new styles you can try with it when as it grows back in! :)

August 7. 2012 at 5:14 PM

Luanne said...

Love this post...love you my brave, brave friend! By the way...you really are cute!!

August 7, 2012 at 9:24 PM

John and Sandy Linder said...

Love your patience and ability to see the light side to a heavy situation!

Thanks for sharing and so glad you felt up to posting. 

John and Sandy 

August 7, 2012 at 10:50 PM

Oleva said...

Reading your posts always brings the question to me "if that happens to me, how will I react?" and "will it sometime happen?" And then I think "I hope I will be as resigned, gracious, accepting and sharing as you and others I know in your experience." Thanks for sharing, and for your Godly spirit and influence in this time of trails in your life. Keep up the good fight. 

Our love and care, 

Carl and Oleva

August 8, 2012 at 12:12 AM

Anonymous said...

Oh Shelley!! I too am so impressed by your attitude and spirit townards all of this!!

And I agress you are just oo cute in your hat!! :) think of you every day!!!!

Love and hugs!!! Janet

August 8, 2012 at 8:50 AM

Ruth said...

Shelley...for your friends who may have to face the "cancer journey" at some point in their lives, you are going to be one hard act to follow1 I love the little quote from your blog..."What must be done is best done cheerfully." You are my inspiration! Think of of you daily in your journey...

August 8, 2012 at 4:26 PM

Anonymous said...

Shelley, I absolutely love your attitude and spirit. It gives us all encouragement at a time when we should be encouraging you! Loved the pictures and the smiles from your and Lynette, You can't change it so you might as well go with it; seems you are all doing this so well. I know there will probably be more rough days ahead for you, but I know you'll face it head on, with the amazing faith that you have and you will get though it like we've seem you already do on many occasions. Keep up the good work dear friend!

Holly

August 8. 2012 at 10:09 PM

Lanae said...

Shelley, your beautiful...especially in the ways that really really truly count the most.

Lanae

August 9, 2012 at 9:29 AM

Dorothy said...

Good Morning to you!

Well now, that is rather a relief, to not have to mess with your hair for a while. I am hoping that all went smoothy this morning. Whooee...end of this week you shall be almost 2/3 done with radiation! So glad you are feeling a touch better. Half done with the chemo, but not half done with it's effects, I'm sure! Anyway...counting the days now until I get to come. They are speeding by here lightning fast...while they can't come fast enough for you1

Love, Dodie.

August 9, 2012 at 11:25 AM

 

gkey said...

dear Shelleykins, 

I am thinking of your everyday. Wishing I was closer and could just pop over anytime I want. 

Take good care, and consider yourself hugged today!

love,

The Hair isn't the MANE thing

in

NE

August 12, 2012 at 7:52 PM

Darcie said...

Can I just say how much I admire your beauty...in your spirit, in your courage, in your strength...in YOU! Thanks for sharing your hear and experience with us!

August 19, 2012 at 9:43 PM

Quick update after long day at Cancer Center

 Monday, August 6, 2012

It's the ghostwriter/sister-in-law again, only with an upgraded title lf "commissioned author," lest anyone thinks I hacked inot Shelley's blog and posted information without her knowledge!

I've been commissioned to do a quick update this evening after their long day at the Cancer Center to let you know that Shelley did find with chemo today. Their day actually began at 11 pm last night when they made a trip to the ER with feeding tube problems, didn't get home until 3 am. Then lots of complications getting started at the Cancer Center, but once things got rolling, they went well, and Shelley is feeling better today than she has for several days. Today she's done a little talking and a little swallowing--things we all do so effortlessly and take for granted, but they were nearly impossible for her the last few days. Shel's feeling enough better that she's hoping to post more details soon, maybe tomorrow, So, stay tuned for further updates from Shelley herself...

4 comments:

Oleva said...

Shelley, sure hope treatments start going smoother for you

Know it's a drain on the both of you. We are glad you have a good caring husband standing by you.

Our thoughts are with you both and your family.

Carl and Oleva

August 6, 2012 at 11:38 PM

Dan & Cyndie said...

Many thanks to the commissioned author!! We do so appreciate you filling in when Shelley isn't up to it! Our thoughts are with Shelley & family so very often throughout the day, each day. 

August 7, 2012 at 3:18 PM

Anita said...

Thanks for this post!

August 7, 2112 at 4:10 PM

The J's said...

I missed seeing this--Thanks!

August 7, 2012 at 5:09 PM

Hanging In There

Thursday, August 2. 2012

I am so very, very thankful to my sister-in-law, being willing to put into words what I couldn't last night. This having surgery every week for something or other sure takes the starch out of me. 

And as the day wanes, so do I, and I don't have the strength to write long entertaining posts.

So, the facts, I missed radiation Tues, because they found my white blood counts too low while they were giving me extra fluid. I have the stomach tube put in that day and 2 liters of fluid. Since then i've been sitting on the couch between radiation and doctors instructions on how to use a stomach  tube. So, I really don't much done except feed myself and take naps And the other things to keep the rest of my body healthy. It is hard to brush my teeth since the inside of my mouth is sore, but you people will be glad to know I am on some high powered medication including a Fentanyl patch, that does a very good gob of pain control as long as no one is poking the sore spots in my mouth. 

I think I can tolerate the way things are going for a few more weeks. I'm just hanging in there.

I do really appreciate you comments and encouraging words. They give me something to do, when I'm awake.

8 comments:

The J's said...

It's wonderful to be able to keep updated by your ghost-writer(s) when you can't, but also SO glad to hear a few words from you Shelley--Think of you so much. I'm off early in the a.m. heading out west for the weekend. I'm overdue for a visit at your house, we'll see how things are next week when I get back. Hope you have as good a weekend as possible! ♥

August 2, 2012 at 10:48 PM

Unknown said...

Dear Shelly, Just stopping by to get caugt up on your life. I am so glad you have such good caregivers. I've come to see how wonderful that can be and how it helps in the healing and just being sick. Hope the Fentanyl patch works. Put those on quite a few people in my care giving days and they seemed to help. Nice when it is painful to swallow that there are other ways of delivering pain relief. Thinking of you. Jeanne

August 2, 2012 at 11:55 PM

Dan & Cyndie said...

so good, once again, to have you sharing with us yourself. The thoughts above on being a brother's keeper are priceless. We all need the love & care of a brother (or sister) sometimes more, sometimes less, but the need of encouragement & help & love from another is essential to our well being, spiritually & naturally. If you could only know how much I cherish the precious give & take of our friendship over the years. Its a marvelous provision really.

Glad the pain is being controlled & the feeding tube helps with fluid intake.

love you dear friend :)

August 3, 2012 at 3:48 AM

Anita said...

Just another hug! Keep on surviving!!d xo

August 3, 2012 at 6:47 AM

Luanne said...

Morning Shelley, I am still thinking about you even if you have not seen me...little granddaughter here these days so I am in Grammy time...full time! Just keep hanging on. Hugs to you today.

Luanne

August 3, 2012 at 8:08 AM

Lanae said...

I'm sorry for the roughness of the way and the weariness and the hurts, and wish a cure/healing could come without it...but also glad you are getting the best sort of care and have such good friend/family to help you too. I think of you often and I now you DO have the inner strength and fortitude to keep hanging on day by day...and the strength and grace God gives, too, to help.

August 3, 2012 at 8:51 AM

Lynda said...

Shelley, you are a remarkable woman to share your journey with all of us. Your "can do" attitude is so inspiriting.

August 3, 2012 at 10:21 PM

Harriet said...

Hello, you dear lady, I love reading your blogs and be assured you and your precious family are in our thoughts and conversations many times a day. And, Shelley, be confident that when you are not able to pray for yourself, be assured that others are remembering you before the Throne. Today is so different; plans were made to visit a  certain couple this weekend but Doro didn't know than that the kitchen here is being remodeled so nothing can delight her more than to be on the end of a paint brush. Lest eve while still in her "meeting clothes" she happily put undercoat on some kitchen cupboards. Now, today she awaits the man of the house to get light gray paint and I can imagine she will be painting the rest of the day. The whole house in done in grays and maroon and is beautiful. A little one is due at this home in 3 months and the Mom assures the Dad that "the kitchen will be finished before the baby arrives." My year with Doro is quickly coming to a close; I've enjoyed it beyond expression but will be glad when another siter can have this privilege.

Time for a nap. Love lots, Harriet

August 4, 2012 at 1:48 PM